Project Data Sphere kicked off 2021 with exciting news: We have completely revamped our Data Sharing Platform. It’s the largest update and enhancement since PDS originally launched more than 6 years ago. 

What does this mean for you? 

  • It’s easier to find data and gain perspective around what is included within each study or contribution. 
  • Along with improved navigation, we have integrated content from clinicaltrials.gov so you have visibility to additional metadata.  
  • If you are interested in finding any data curations or what we consider linked-data, such as the AHRQs Medical Expenditure Panel Survey data, it’s incredibly easy to find through new filter options. 
  • You will also notice that the process for contributing data is greatly improved. 

Thanks go to our active user community (now over 3,000 registered) for making this platform what it is today. We are listening and striving to maximize data reuse, advance oncology research, and serve our patient population. 

Feedback has been gratifying. A user from the University of North Carolina with a newly accepted publication said, “Thank you for building this amazing platform so we could use the data to tackle real problems.”

The trust and engagement by data-sharing partners remain a critical piece of the platform. A big shoutout to Merck KGaA (EMD Serono), Eli Lilly, and G1 Therapeutics for their recent contributions across Glioblastoma, Pancreatic Cancer, Small Cell Lung Cancer, and Non-Small Cell Lung Cancer. 

Every data contribution counts, and Project Data Sphere is committed to advocating on behalf of all patients participating in clinical trials by driving greater reuse of their individual data.  Our laser focus for 2021 is ‘Data Reuse’ through stronger positioning of our sharing platform and analytics space, active research programs, and by establishing key partnerships to drive progress. 

We have been working hard to plan an upcoming virtual symposium on this topic so mark your calendar for September 23 and join to hear how effective reuse of clinical trial data can lead to faster approvals and gain insights around how you can contribute to this critical ecosystem.

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