More than 2,400 researchers are using the Project Data Sphere® platform to answer important questions about cancer. Many of them have offered feedback on how we can make the platform even easier to use.  We are delighted to announce that we expect an updated platform to be available early in 2Q 2020.

A new PDS website will be launched at the same time, offering more information on our programs, introductions to new program managers and easier ways to communicate with us.

The website will be a place that you can register for important events like the PDS Symposium IX on rare cancer registries that we are planning for Oct. 7, 2020, in the Washington DC area. 

This annual symposia series has consistently elevated the conversation about research areas that are ripe for fresh attention in the realm of cancer clinical trials, often deriving major new thrusts from academia, industry as well as from our FDA.

Rare cancer registries hold potential to solve some of the most difficult challenges to advancing treatment of these rare cancers, which account for more than 25% of the cancers reported worldwide.

The symposium attempts to bring together multiple stakeholders representing all sides of this challenge: Practice in the clinic, Pharmaceutical research, Policy and regulatory science, and Patient advocacy to brainstorm the operational dynamics between the groups.

Registries can impact these four areas in the following ways:

  • Refine clinical decision making and more effectively manage patient therapy.
  • Assist pharma in designing comparator arms efficiently, thus accelerating the drug development process.
  • Inform regulators who must decide whether to approve new medicines and how to use them in rare cancers.
  • Provide relief for the suffering patients with better treatment strategies.

Symposium IX will consider how registries for rare tumors might address these existing shortcomings and drive improvements in patient care. More information will be coming soon.

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