Merkel Cell Carcinoma

The Merkel Cell Carcinoma (MCC) Patient Registry is a national multi-institutional collaborative effort that will prospectively follow and record outcomes and events in MCC patients. MCC is the prototypical rare tumor, and this registry will trail blaze new methodologies that will enable multiple investigators to examine real-world outcome data in real time.

Task Force Co-Chair David Miller Presents at MMIG Annual Meeting

David Miller, MD, co-chair of PDS’ Merkel Cell Carcinoma Task Force, presented an overview of PDS’ MCC Patient Registry during the Merkel Cell Multicenter Interest Group (MMIG) annual meeting on March 1, 2019, in Washington, D.C.

Task Force Chairs

Michael Ka Keu Wong, MD, PhD,FRCPC
Professor, Department of Melanoma Medical Oncology
MD Anderson Cancer Center
David M. Miller, MD, PhD
Physician, Hematology/Oncology and Dermatology
Massachusetts General Hospital


Vishal Patel, MD
Mohs Micrographic & Dermatologic Surgery
Assistant Professor of Dermatology, Director of Cutaneous Oncology, GW Cancer Center
George Washington University School of Medicine & Health Sciences

Program Manager

Ravi Komandur, PhD
Program Director
Project Data Sphere



PDS Symposium IX | Washington, DC | October 7, 2020


Project Data Sphere and MCC Patient Registry: From Promise to Prototype | Merkel Cell Carcinoma Multicenter Interest Group (MMIG) Annual Meeting | March 1, 2019

Major Milestone

February 2019: Task Force Co-Chair David Miller, MD, uploads first EHR records to beta version of multi-institutional registry at Massachusetts General Hospital.


Rare Tumor Registry Workshop | Boston, MA | May 1, 2018